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Benzodiazepine horror story on The Mental Wellness Summit 2

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The Mental Wellness Summit 2, airs online September 25 – October 2, 2017

Whether challenged by depression, anxiety, stress, addiction or another mental health challenge, every single person is impacted and affected – you, your family, friends, neighbors and coworkers -either directly or indirectly every single day.

This Mental Wellness Summit 2 will provide you with the information you need to:

  • Overcome the silence, isolation and fear of your struggle
  • Transcend outdated, prescription-based healthcare systems
  • Find holistic practitioners and natural solutions for your pain
  • Implement expert practices, tools and tips into your daily routine

My interview covers the dangers of benzodiazepines and why GABA is a more effective option for anxiety.

Here are some snippets from my interview where I discuss benzodiazepines which are

  • a class of psychoactive drugs / tranquillizers with sedative, sleep-inducing, anti-anxiety, anticonvulsant, and muscle relaxant properties
  • they target the GABAA receptor and enhance the effect of the neurotransmitter GABA
  • the common Brand name/drug name are: Xanax/ Alprazolam, Klonopin/Clonazepam, Valium/ Diazepam, Ativan/ Lorazapam

These medications are commonly prescribed for:

  • Anxiety, social anxiety, panic, pain/dental pain, insomnia, fear of flying, Lyme disease, ER visits for back/neck spasms
  • Children with autism
  • IBS
  • pre-surgery anxiety
  • ICU patients needing ventilation
  • during chemotherapy for cancer treatments – for anxiety, nausea and anticipatory nausea

I share this true benzodiazepine horror story:

Been totally disabled by benzos for over 3 years. I have been off meds for 17.5 months and the impact of these meds makes any anxiety I ever felt a cake walk. Please run from the poison.

When I turned 21 I went to the doctor for dizziness and they put me on xanax. I started to feel anxious and they then added Zoloft. That was the start of a long journey. I was shifted from one anti-depressant to another. At 34 I was told I was treatment resistant and they added lamotrigine. Then my world crashed at age 37. I have been on xanax, then klonopin, then Ativan, then back to xanax, then valium to taper. I had also been given ambien to sleep in early 30s.

I tapered off meds over a period of a year. I was on 1.5 mg xanax and tapered off valium as prescribed. I have tried many supplements but I react poorly to all of them. I get very agitated and revved up.

I have locked shoulder muscles, neck, jaw; I have internal vibrations, I get bad headaches, jelly legs, distorted vision like floaters and squiggles and fireworks, my teeth all feel like they will fall out but they are not loose, it feels like adrenaline or cortisol rushes through the body. Sometimes my arms go numb. I am pretty tortured every day. These meds are truly causing chemical warfare on some of us. 

This is one of the many reasons I do this work – so more people don’t end up in this situation and so everyone knows about the dangers of benzodiazepines and that there are nutritional solutions for anxiety. One of them is the amino acid GABA and I discuss this in the latter half of the interview.

I hope you can join us on The Mental Wellness Summit 2 summit!

Registration details are here

World Benzodiazepine Awareness Day 2017: Awareness and Anxiety Nutrition Solutions

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World Benzodiazepine Awareness Day 2017 was celebrated earlier this week on July 11th. The organization recommends that everyone should watch and share this short informative video: The risks of taking benzodiazepines (Klonopin, Xanax, Ativan) as prescribed. It could save your life or the life of someone you know.

This is what W-BAD shares about benzodiazepines and Z-drugs that are used as prescribed:

Benzodiazepines (Xanax, Klonopin, Ativan, Valium, Librium, and others) as well as Z-drugs (Ambien, Lunesta and others), which are similar, have the most debilitating withdrawal reactions in all of medicine.

This happens in regular, everyday people who are taking the medications exactly as their doctor prescribed. It also happens to people on what they think are “low doses” and is not just a “high dose” problem. This happens because the prescribing guidelines for this class of drug recommend short-term use only (less than 2-4 weeks), yet doctors are prescribing them for much longer. Even worse, these unsuspecting patients are given no warning (or informed consent) by their doctor about these risks and dangers before taking the prescription past the recommended timeline. The patients think the drugs are “safe” because they are prescribed when they are actually quite dangerous medications that are capable of inflicting sometimes severe and life-threatening withdrawal syndromes which are known, for some people, to persist for many years.

W-BAD shares these stats about how common it is to see physical dependence, adverse effects, and withdrawal:

Experts and studies estimate that as many as 60% of people taking benzodiazepines for more than the recommended 2-4 week time period will develop physical dependence, adverse effects, and withdrawal

60% is actually a conservative percentage, as some other sources indicate that “50-80% of people regularly taking benzodiazepines (even in ‘low dose’) for longer than a few months will develop a physical tolerance to the drug and become dependent, resulting in difficulty stopping benzodiazepines because of withdrawal symptoms”.

30% of long-term users will experience severe withdrawal or adverse effects which may include seizures, hallucinations, psychosis, akathisia, and sometimes suicide or death (people are especially at risk for severe withdrawal if they over-rapidly taper or cold-turkey their benzodiazepine/Z-drug).

The tapers to discontinue these medications, once you’ve taken them past 2-4 weeks and depending on dose, can last many months or years. I see this all the time in my practice.

About 10-15% of people who withdraw will develop a protracted withdrawal syndrome which can potentially persist for many years (there are anecdotal reports of it persisting up to five, seven, and even ten years post-cessation.). Others, even after a slow, gradual reduction of the benzodiazepine or Z-drug will experience withdrawal that lasts for up to 18 months post-cessation.

Physical dependence is a physical condition, a state of adaptation in the body caused by chronic use of a tolerance forming drug, in which abrupt or gradual drug withdrawal causes withdrawal.

When someone becomes physically dependent to benzodiazepines (or Z-drugs), they are also at risk for developing tolerance. With benzodiazepines/Z-drugs, specifically, when the receptors in the brain become adapted or accustomed to the action of the original dose of BZ, more of the drug is needed in order for the desired therapeutic effect (or the original effect at the original dose) to be achieved. This means that the drug loses its effectiveness and the person taking it can begin to experience withdrawal symptoms while still taking the prescribed dose of the drug.

It’s very unfortunate that some of the very same symptoms that are trying to be addressed by these medications are now amplified or seen for the first time:

Some common symptoms of tolerance include increasing anxiety, panic attacks, development of agoraphobia for the first time, interdose withdrawal (withdrawal symptoms emerging in between doses), as well as a plethora of other physical/neurological/psychological symptoms.

Visit the website World Benzodiazepine Awareness Day to learn more and to get involved:

By spreading the word about taken-as-prescribed benzodiazepine risks, harms, and dangers, W-BAD (World Benzodiazepine Awareness Day) hopes to bring awareness to the general public and the medical community about this problem before more people are needlessly harmed. Please help share this video with everyone you know and, together, we can prevent more victims of iatrogenic (caused by medicine) dependence, withdrawal, and injury from prescribed benzodiazepines and Z-drugs.

There are some heartbreaking stories on the Facebook page (an excellent resource) :

W-BAD acknowledges Professor Malcolm H. Lader for guiding them in providing information that appears throughout the website and in handout materials. Prof. Lader first described benzodiazepine withdrawal syndrome as a potential brain injury in the scientific literature, and also campaigned around the world to get everyone from politicians to royalty to listen.

Here is some guidance with slow tapering protocols from W-BAD (and never stop cold-turkey).

For additional resources this is the blog post I published last year: World Benzodiazepine Awareness Day – say NO to Benzodiazepines for anxiety!

Awareness and nutrition solutions

I do love that this awareness is being created. It is so needed for those who are prescribed these medications and currently taking them, for anyone who may consider a future prescription, and for everyone in the medical profession, as well as all integrative and functional medicine practitioners and nutritionists.

All this awareness creates the perfect opportunity to offers nutrition solutions too, so we can address:

  • the initial root cause/s of your anxiety which led to your prescription of this medication to start with
  • the anxiety you now experience even through you were prescribed these medications for something else (such as pain)
  • your current biochemistry and nutritional status to facilitate an easier taper from the benzodiazepine with the least withdrawal effects
  • your current biochemistry and nutritional status so you don’t get anxiety in the future, once you have completed the taper

And if you are considering a benzodiazepine prescription in the future you are now informed about the dangers and have nutritional resources too.

When I am working with someone who has been prescribed a benzodiazepine, I get them nutritionally stable BEFORE they even consider a benzodiazepine taper.

I use amino acids like GABA and tryptophan, melatonin and niacinamide to make the taper easier and so we can balance brain chemistry before tapering and then during the taper (all under the supervision of the prescribing doctor and using the Ashton taper protocol).

Dr. Jonathan Prousky, talks about his success with benzodiazepine tapers on a prior Anxiety Summit interview – using melatonin, niacinamide, Neurapas Balance, rhodiola and GABA.

There is also a big focus on diet (real food/often a Paleo diet, no additives, organic, healthy fats, no gluten, no sugar, no caffeine, quality grass-fed/wild protein), addressing high cortisol if needed, addressing low zinc, low iron, low vitamin B6, low B12 and looking at gut health. Lifestyle and stress reduction is important and we look at and address all possible 60+ underlying factors/causes.

This is all covered in detail in my book “The Antianxiety Food Solution” (on amazon here) The basics plus advanced topics (like fluoroquinolone antibiotic issues when on benzodiazepines and more) are also addressed on the Anxiety Summits.

I feel very strongly about providing this nutritional support and sharing how helpful it is because organizations like W-BAD and Benzobuddies.org (as much as love them) advocate for no nutrient support suggesting it won’t help or could make symptoms worse. I will admit that some people who are tapering are very sensitive and in these situations very very tiny amounts (as small as a pinch in some instances) of some of the nutrients may be a better option, always only doing one thing at a time to make sure it’s helping and not making symptoms worse, and doing functional medicine tests. Using essential oils, light therapy, gentle detox, Heartmath and yoga are wonderful to start with, in conjunction with all the diet changes.

Please share your benzodiazepine story and what has helped you taper more easily and recover.

If you’re a practitioner please share what approaches you have used to help your clients or patients taper more easily.

Prozac Nation Is Now the United States of Xanax in New York Times Magazine: my response

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This is the title of a new article recently published in the New York Times Magazine: Prozac Nation Is Now the United States of Xanax. In other words, depression has been replaced by anxiety and the respective medications.

It’s an excellent read for creating awareness about anxiety and benzodiazepines but also sad because there is so much we can do and no solutions are offered. Here are some startling stats shared in the article:

According to data from the National Institute of Mental Health, some 38 percent of girls ages 13 through 17, and 26 percent of boys, have an anxiety disorder. [Note: this was quoted in the article. I’m trying to track down the source because an article in Time Magazine last year says this: ‘About 30% of girls and 20% of boys–totaling 6.3 million teens–have had an anxiety disorder, according to data from the National Institute of Mental Health’ as of 2015.]

On college campuses, anxiety is running well ahead of depression as the most common mental health concern, according to a 2016 national study of more than 150,000 students by the Center for Collegiate Mental Health at Pennsylvania State University. [Both anxiety and depression have shown slight but persistent increases each year for the past six years]

Meanwhile, the number of web searches involving the term [anxiety] has nearly doubled over the last five years, according to Google Trends. (The trendline for “depression” was relatively flat.)

I’m the optimistic type, I’m proactive and I like to give hope as well as solutions – and I have quite a bit to say about this article so here goes.

#1 Too many people are prescribed benzodiazepines without knowing what they are getting into

The article does not address the issues with benzodiazepines: how too many people are prescribed benzodiazepines without knowing what they are getting into, with many suffering dreadfully and never offered nutritional solutions. When I shared the article on my facebook page, someone in my community shared this (and gave me permission to share it further in the hope someone else will be spared her suffering)  

Been totally disabled by benzo for 3.5 years. I have been off meds for 17.5 months and the impact of these meds makes any anxiety I ever felt a cake walk. Please run from the poison. Find healthy foods, nutrition and take the break your body is begging you for. We need to listen to our bodies! If it is screaming with anxiety maybe you need to make some life changes. I wish I did instead of taking a med that has almost destroyed me.

I asked her what symptoms she was experiencing, and as well as suffering from severe motion sickness (so badly she can’t even leave her home) she also shared this:

I have locked shoulder muscles, neck, jaw; I have internal vibrations, I get bad headaches, jelly legs, distorted vision like floaters and squiggles and fireworks, my teeth all feel like they will fall out but they are not lose, it feels like adrenaline or cortisol rushes through the body. Sometimes arms go numb. I am pretty tortured every day. These meds are truly causing chemical warfare on some of us.

I believe this will be the next big epidemic and I hope I heal somehow to help others

She had been on a variety of benzodiazepines, SSRIs and other medications for over 17 years and you may think this is an isolated incidence. I assure you it is not – just read the list of the most common psychological and physical symptoms of benzodiazepine withdrawal.

5mg diazepam / Valium, a benzodiazepine

Here is some useful information about the risks and dangers of benzodiazepines:

#2 Let’s help anxious individuals like you find solutions

Scott Stossel, journalist and author of My Age of Anxiety: Fear, Hope, Dread, and the Search for Peace of Mind was quoted as saying this in the article:

The silver lining for those with nervous disorders is that we can welcome our previously non-neurotic fellow citizens into the anxious fold.

My first response to the article is this: I say NO to Scott Stossel and instead I say let’s think bigger and instead let’s invite the anxious citizens into the calm and no-more-anxiety fold!

Scott’s book is well-written book, offers an excellent understanding of what it feels like to experience anxiety and panic attacks, and has many compelling stories. But as a number of his Amazon reviewer’s say the big question is this: what is the answer or solution? Unfortunately it’s not provided in his book (or the New York Times Magazine article).

The New York Times Magazine article provides another anxiety resource that has helped “bring anxiety into the open, and allowed its clinical sufferers to band together in a virtual group-therapy setting”: The Sarah Fader on twitter, creator of the hashtag #ThisIsWhatAnxietyFeelsLike and a mental-health advocacy organization called Stigma Fighters.

Again, these are wonderful resources for support, awareness and advocacy but they don’t offer solutions if you suffer from anxiety. With nutritional solutions we can change this to #ThisIsWhatCalmFeelsLike.

#3 Too few people know about nutritional solutions

Too few people know about nutritional solutions and that has to change. Clinically we know it works and there is now SO much research supporting this approach.

Here are a few of many blog posts on my site that share powerful anxiety nutrition solutions:

Here is one of the latest food and mental health studies – A modified Mediterranean dietary intervention for adults with major depression: Dietary protocol and feasibility data from the SMILES trial

This and other dietary and nutritional approaches for both depression and anxiety will be presented at the upcoming International Society of Nutritional Psychiatry Research conference in Bethesda, MD next month)

Here are two book resources too: my book The Antianxiety Food Solution and integrative psychiatrist Kelly Brogan’s book A Mind of Your Own.

I’d love your feedback

  • Which nutritional solutions topics do you have questions about and in what areas do you still need help?
  • What ideas do you have for getting this nutritional solution message out in a bigger way?
  • What do you wish you’d known when you were first diagnosed with anxiety and prescribed medication (such as a benzodiazepine or SSRI)?
  • How do we convince the naysayers that this does work and is worth implementing?
  • How do we get the mainstream mental health community on board?
  • What anxiety resources do you have to share

Vulvodynia: oxalates, GABA, tryptophan and physical therapy

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On a recent webinar with Julie Matthews, I shared how healthy foods that are high in oxalates caused me excruciating foot pain: Oxalates and leaky gut for Anxiety.

We also mentioned how oxalates can be a factor in vulvodynia and someone asked this question on the blog:

I just listened to the webinar talking about oxalates. I was shocked and delighted to hear the mention of the connection between high oxalates and vulvodynia. My friend has suffered with this for 18 months with little improvement. She has painful feet so I am wondering if there is indeed a connection for her situation. Could you please explain a bit more of the vulvodynia/ oxalates connection? I would like to give my friend the information.

Before I share the resources I offered her for her friend, let me share this about vulvodynia:

Vulvodynia is defined as chronic vulvar burning, stinging, rawness, soreness or pain in the absence of objective clinical or laboratory findings to explain these symptoms. Vulvodynia is a chronic pain syndrome affecting up to 18% of the female population and is generally regarded as an underdiagnosed difficult to treat gynecological disorder.

There is still much we have to learn about vulvodynia and the causes are multifactorial:

The etiology [cause] of vulvodynia is still enigmatic and is probably multifactorial-including physiological concerns (eg, pelvic floor muscle dysfunction, neuropathic pain, and psychosocial) and sexual issues (eg, anxiety and sexual dysfunction). Although it is a common syndrome, most patients are neither correctly diagnosed nor treated. A diagnosis of vulvodynia is based upon patient history and lack of physical findings upon careful examination. No clinical or histological findings are present to aid in diagnosis. Most treatment options for vulvodynia are neither well studied nor have an evidence base, relying instead upon expert opinion, care provider experience, and use of data from other pain syndromes. However, many patients show marked improvement after physical therapy for the pelvic floor, medications for neuropathic pain, and psychosexual therapy.

You’ll notice that oxalates and other dietary approaches are not mentioned. There are actually 2 studies that state there is NO connection between dietary oxlalates and vulvodynia. This is the first one: Influence of dietary oxalates on the risk of adult-onset vulvodynia. The second paper: Urinary oxalate excretion and its role in vulvar pain syndrome concludes that:

Urinary oxalates may be nonspecific irritants that aggravate vulvodynia; however, the role of oxalates as instigators is doubtful.

In this paper: Vulvar vestibulitis-a complex clinical entity, a low oxalate diet and calcium citrate did help:

Successful outcomes were achieved in 14.3% of patients using a low oxalate diet and calcium citrate supplementation

The Vulval Pain Society is a wealth of information on vulvodynvia and they have this information on the low oxalate diet, saying it helps many women and it worth trying:

A diet low in oxalate salts has been suggested as a treatment for women who experience unexplained vulval pain or vulvodynia… it is widely used in the United States as a treatment for vulvodynia. The diet may be supplemented with the use of oral calcium citrate.

There are few doctors in the UK who are aware of or routinely use this treatment. Many specialist doctors who run vulval clinics in this country [the UK] are skeptical about the treatment, as much of the evidence has not been published in the medical literature and the treatment is not of proven value. A diet low in oxalate with or without calcium citrate may, however, benefit some women with vulval pain and this is certainly an option for some women to try.

The vulvar pain is often described as a “burning” or “cutting” or “sharp” kind of pain. You’ll see medications recommended for the neuropathic pain in many of the studies and on the Vulval Pain society site.

It does concern me that so many women are prescribed SSRIs and medications like gabapentin and benzodiazepines when there are the safer and more effective options of the amino acids such as tryptophan and GABA.   When dosed correctly these individual amino acids help with some of the pain and anxiety right away while other root causes are addressed. 

For my clients, I recommend targeted individual amino acids instead of the medications. I recommend a trial of tryptophan instead of an antidepressant, assuming they score low on the serotonin section of the amino acid questionnaire.

Research shows there is serotonin involvement with vulvodynia. In this study of women with PVD (provoked vestibulodynia i.e. pain in the entrance of the vagina, common with vulvodynia):

Polymorphism in the serotonin receptor gene, 5HT-2A, has been associated with other chronic pain disorders such as fibromyalgia…. The results [of this study] indicate a contribution of alterations in the serotonergic system to the patho-genesis of PVD and gives further evidence of PVD being a general pain disorder similar to other chronic pain disorders.

I also recommend a trial of GABA instead of gabapentin or one of the benzodiazepines, assuming they score low on the GABA section of the amino acid questionnaire.

Tryptophan and GABA can help with both the pain, and the anxiety and depression that is commonly seen with vulvodynia and other pelvic floor conditions – right away while other root causes are addressed.

Since acupuncture is often reported to be helpful, I also consider a trial of DPA for endorphin boosting and hence some pain reduction too.

Physical therapy is often extremely beneficial and frequently overlooked, so finding a good pelvic floor PT to be part of your healing team is key too.

When responding to the blog question I commented that “your friend is fortunate to have you looking out for her”. Using some or all of the above approaches I would expect her to find some relief of the vulva pain, the foot pain and experience reduced anxiety and depression (assuming these are her root causes).

Please note that this is not an exhaustive list of contributing factors for vulvoldynia – other factors could include candida, infections such as HPV, IBS/SIBO, and trauma and sexual abuse. My colleague, Jessica Drummond, nutritionist and physical therapist, and an expert on female pelvic pain, writes about immunity, dysbiosis, gluten and other food sensitivities, cortisol and sex hormone imbalances in this article: Vulvovaginal Pain and The Immune System: Practical Steps for Vulvovaginal Pain Relief. A full functional workup is required and your root cause can be different from someone else’s root cause.

I’d also like to add that although dietary oxalates cause excruciating pain in my feet, I’m so fortunate, in that I do not have vulvodynia.

Have you had success with a low oxalate diet and calcium citrate for vulvodynia? And other pain (in the feet or hips or elsewhere in the body)?

Has physical therapy with a pelvic floor specialist helped?

Have you found tryptophan, GABA or DPA to help with the pain and the anxiety and/or depression too?

Have any other treatments helped you?

If you’re a practitioner what approaches have helped your clients/patients?

Please share questions or feedback below.

 

Benzodiazepines, SSRIs, CBD and liver detox: on the Detox Project

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Here are a few of the many recommended speakers and interviews on The Detox Project (an online summit). It runs Sept 26 to October 3. I hope you can join us – the topics are so relevant for everyone, and certainly important if you suffer from anxiety or depression.

Toxic Impact of Antidepressants – Kelly Brogan, MD

  • Misunderstood toxicity of lower-dose prescriptions
  • Role of coffee enemas in complex antidepressant withdrawal
  • Resources for detoxing from medication

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Cannabidiol (CBD) and Detox – Philip Blair, MD

  • Preparing the body to detox with CBD
  • Endocannabinoid system’s relationship to disease
  • Immune system modulation effects of CBD

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Best Herbs and Supplements for Detoxification – David Jockers, DC, MS, CSCS

  • Options for glutathione supplementation
  • Bitter herbs to cleanse the liver
  • 3 minerals necessary for effective detox

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And mine…. Toxicity of Benzodiazepine Medication for Anxiety – Trudy Scott, CN

  • Avoiding benzodiazepines (even for short-term use!)
  • Toxic replacements for BPA in plastics: BPS & BPF
  • Gluten’s impact on lowering serotonin levels

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Detoxify your body to aid in prevention of – and possibly overcome – chronic illnesses! The unhealthy amounts of chemicals and toxins in our bodies are causing tremendously negative consequences! Let’s overcome this crisis! I hope you can join us to hear the many topics being covered.

detox-project

Use this link to register for access: https://qt247.isrefer.com/go/DETOX16reg/trudyscottcn/

Use this link to purchase at special prices: 
https://qt247.isrefer.com/go/DETOX16order/trudyscottcn/

Bergamot as effective as diazepam for reducing anxiety?

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bergamot-green

Could the essential oil bergamot be as effective as diazepam (a benzodiazepine) in reducing anxiety?

An animal study shows very promising results: Acute effects of bergamot oil on anxiety-related behaviour and corticosterone level in rats

both BEO [bergamot essential oil] and diazepam exhibited anxiolytic-like behaviours and attenuated HPA axis activity by reducing the corticosterone response to stress

What this is means is that the bergamot was found to be as effective as diazepam in reducing the anxiety. Bergamot also reduced cortisol levels.

I’m really excited to see a study comparing an essential oil with benzodiazepines because I’m really worried that so many people are being prescribed benzodiazepines and that they are being used long-term. They are meant to be used short-term, if at all. They have very addictive properties, there are dependence issues and can be really really hard to quit, often with a very challenging withdrawal period. And too many people, including many in the medical profession, are not aware of all the issues once you start down this road.

If you’ve been following me for some time you’ll know I’m really vocal about the dangers of this class of medication.  You can read about the first World Benzodiazepine Awareness Day here.

How wonderful if we use these other wonderful approaches instead of benzodiazepines: use an essential oil like bergamot (or more than one – like lavender, roman chamomile and neroli too) and make food changes (like quitting gluten, caffeine and sugar), and add some amino acids like GABA and tryptophan and reduce the stress in our lives!  

I talk about this research and other essential oils for anxiety and stress in the upcoming Essential Oils Revolution 2 summit which runs August 22 to 29. I’m so thrilled to be part of this event!

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I can’t wait to learn more and hope you’ll tune in and learn tons too. Here is the registration link https://qt247.isrefer.com/go/EOR16reg/trudyscottcn/

Let’s get the conversation started now. Feel free to share which essential oils you use for anxiety and stress? And how do you use them?