MTHFR workshop for the layperson

March 3, 2015

MTHFR lay person training

MTHFR is one hot topic and many of you are getting your MTHFR results, but do not know what to do with them.  Methylation cycle abnormalities can predispose you to disease. The MTHFR SNP (Single Nucleotide Polymorphism) is at a key position in the methylation cycle and if not working properly, can affect the whole pathway, creating symptoms and disease. The good news is that nutritional protocols and lifestyle modifications can help tremendously.  Most conventional doctors do not know about MTHFR, they have not studied the biochemical pathways and they don’t know how to support you on your journey to health.

Coleen Walsh, Dubbed the “methyl queen” Created a Guide for the Everyday Mutant – A Training on The Basics – MTHFR and Methylation Pathways – Just for You – The Everyday Mutant!

This 3-hour presentation breaks down the biochemistry of these pathways and epigenetics to give you a big picture idea of what is happening inside your cells and why it is important. Coleen is a natural educator and has an innate ability to break down the scientific information into to layman terms, so you can easily understand these pathways.  She created motion graphics to help you get a visual of the biochemistry and what that could mean to your health when you have these SNPs (mutations).

MTHFR interview from the Anxiety Summit – for your listening pleasure

I had the pleasure of interviewing Coleen on season 1 of The Anxiety Summit. I’d like to share that interview with you here, so you can get a taste of her level of expertise. It’s yours to listen to whether or not you can attend the training. Enjoy!

Are Your Genes Depressing You? MTHFR and Your Mood: Trudy Scott interviews Coleen Walsh on The Anxiety Summit

  • The Methylation Cycle overview, MTHFR and B vitamins as cofactors
  • How MTHFR effects the BH4 cycle and serotonin and dopamine
  • Factors that disturb methylation, how to test and what to do
  • Epigenetics and how SNPs are not our destiny

Listen to the recording here.

 

Learn more and purchase

Here is the link to read more about Coleen’s online MTHFR/methylation workshop for the lay-person and every day mutant on March 7th, and to make your purchase:

http://www.easywebautomation.com/app/?Clk=5393325

PS. If you can’t make it live, you can still register and get the recordings/handouts later

PPS. This is a workshop for the lay-person. The 5 hour practitioner training was last week – if you’re a practitioner or would like to share this with your practitioner you’ll be able to get the recordings and handouts by signing up here for the MTHFR and Methylation Practitioner training. More information can be found on my blog here.

YOU’RE WELCOME TO INCLUDE THIS ARTICLE IN YOUR EZINE OR WEBSITE AS LONG AS YOU INCLUDE THIS COMPLETE BLURB WITH IT:

Trudy Scott (CN), Certified Nutritionist is the founder of www.everywomanover29.com, a thriving nutrition practice with a focus on food, mood and women’s health. Trudy educates women about the amazing healing powers of food and nutrients and helps them find natural solutions for anxiety and other mood problems. Trudy’s goal for all her clients (and all women): “You can be your healthiest, look your best and feel on-top-of-the-world emotionally!”

 

Menopause is a Trip: Travel First Class summit

March 2, 2015

Just a quick reminder – this online event starts TODAY – Menopause is a Trip: Travel First Class, hosted by my colleague, Holistic Health Coach Katherine Miller.

I am happy to invite you to this online event that will bring together 16 experts in women’s health and balancing hormones that will help you find relief from menopausal symptoms and enjoy a healthy, vital future.

Here is an excerpt from a recent article Katherine wrote:

Every woman goes through menopause, yet very few prepare for it. This natural shift of our biology, from reproductive potential to what I call the “self-creative” stage, is a potent time for women. So much of our energy is freed up for new ventures, including our own self-development.

Yet rather than enjoy menopause as a time of positive potential, most women find themselves struggling to cope with the hot flashes, night sweats, mood swings, low libido, exhaustion and host of other symptoms for which “the change” is known. The problem is that rather than practicing good self-care, most of us have been pushing ourselves past our limits for years. We begin the 10+ year transition into menopause when our resources are at their lowest, which causes natural hormonal shifts to be unnaturally dramatic or even hellish.

Fortunately, it doesn’t have to be that way. “Lifestyle is so under-rated as a preventive measure in staying well–stress reduction, sleep, exercise, eating well,” says Dr. Mache Seibel, a professor at UMass Medical School, who focuses on perimenopause and menopause. “There has to be an awareness of ‘How can I take care of myself?’”

Even those whose symptoms of exaggerated hormonal imbalance have become impossible to ignore have more choices than they may realize. “It’s just quite incredible how food choices, lifestyle choices, good quality sleep, detoxifying our environment, taking care of the gut, and taking care of the liver can have some really profound impacts on our hormones,” says health coach Magdalena Wszelaki.

Dr. Mache Seibel and health coach Magdalena Wszelaki are speakers on the summit and I support everything they say!

My talk is today and the focus is anxiety …. “Your key nutrients to end anxiety and stress during menopause.” I talk about:

  • low GABA and low serotonin and the connection to low progesterone and estrogen
  • how important adrenal support is when you go into menopause
  • key nutrients like zinc and vitamin B6 – for anxiety, pyroluria and hormone balance
  • why grass-fed red meat is good (really!!) – zinc, iron, omega-3s and more
  • and why skipping the coffee is a good thing!

Also hear Dr. Tami Meraglia today. She is an integrative MD, and author of the soon-to-be-released book called The Hormone Secret (I have my advance review copy and it’s good!) and one of my favorite hormone docs (and a good friend who I adore)!

And do catch the rest of the excellent line-up through the week.

To entice you and give you a feel for what is to come, here are some tweets with quotes from many of the speakers.

Register here https://tz207.isrefer.com/go/menopuasesummit/TSsummit2015/

YOU’RE WELCOME TO INCLUDE THIS ARTICLE IN YOUR EZINE OR WEBSITE AS LONG AS YOU INCLUDE THIS COMPLETE BLURB WITH IT:

Trudy Scott (CN), Certified Nutritionist is the founder of www.everywomanover29.com, a thriving nutrition practice with a focus on food, mood and women’s health. Trudy educates women about the amazing healing powers of food and nutrients and helps them find natural solutions for anxiety and other mood problems. Trudy’s goal for all her clients (and all women): “You can be your healthiest, look your best and feel on-top-of-the-world emotionally!”

 

Winter blues or SAD: light therapy

February 27, 2015

winter-blues

Seasonal affective disorder (SAD) or “winter blues” is a form of depression most often associated with the lack of light during the fall and winter months. It is very common and may be associated with low serotonin levels. We often associate low serotonin with depression, however low serotonin can also be associated with: anxiety, excessive worry and feeling overly stressed. There’s evidence of seasonality in anxiety and panic attacks, just as there is with seasonal affective disorder (SAD). Another common sign of low serotonin is increased carbohydrate cravings, especially during the afternoon or evening.

One every effective approach for SAD is light therapy. I also find amino acid therapy and a dietary approach to be very useful but we won’t go into that today.

I’ve just finished reading a really great book called Winter Blues: Everything You Need to Know to Beat Seasonal Affective Disorder by Dr. Norman Rosenthal MD, and the research is fascinating. He is a fellow South African who moved to the USA and found he was depressed each winter. After 3 seasons of this, he started doing research on light therapy and was one of the original SAD researchers. He is internationally recognized for his pioneering contributions to understanding SAD and using light therapy to treat it.

I asked some colleagues what they have used and/or liked, and recommend:

Donna Kelley, Certified Holistic Nutritionist

I have a Blue Max, full spectrum, 70 watt dimmable desk lamp. I have had it for 3 years and actually use it to work by. It was recommended by Julia Ross in her certification program

[Trudy: this one is made by Full Spectrum Solutions and is the one I use and recommend to my clients].

winter-lamp

Christine Wokowsky, Board Certified in Holistic Nutrition

Verilux Happy Light. My office is the darkest room in the house and I have one sitting on my desk, especially helpful in the winter. This is the second Verilux Happy Light I have used and I really like it. Living in Nevada where there is sunshine over 330 days of the year I am so accustom to light and brightness if I am in a dark room or space for too long it really affects me. This has been a great product for me and I can recommend it.

happy-light

Tracey Schuyler, Owner, Nutrition Counselor at Redefining Food 4 Health, LLC

Like Christine, I personally use the Verilux Happy Light (5k LUX) , which I purchased recently. It made a difference right away. I live in Boise, Idaho, and we are accustomed to winter inversions … sometimes days / weeks on end without any sunlight! I place it on my bathroom counter, turn it on in the morning before I shower, and turn it off as I’m leaving the bathroom, after drying my hair, etc. (about 25 minutes).

Shirley Pastore McCormack, Writer, Life/Wellness Coach, Registered Yoga Teacher

I use the Blue Max Lighting (BlueMax 70W dimmable) floor lamp. I use it 20 minutes each morning from the fall to spring equinoxes. I noticed a great level of improvement, but even more improvement when a doctor prescribed Vitamin D therapy. I was moderately to severely deficient, and needed 10,000 IU for 4-6 weeks under her care to bring my levels up. I do well with the light therapy as long as it is used in conjunction with regular daily doses of D3 (I’m now on 2000IU daily). The light therapy just seems to be “part of the whole solution.”

blue-max

Dr Josh Friedman, PHD, Integrative Psychotherapy of Omaha

I follow the guidelines of Columbia University’s Center for Environmental Therapeutics. They have done research on a variety of light boxes and the one on this page is inexpensive and effective [and is 10,000 lux]

daylight-simulator

Do you get the winter blues? Have you had success with light therapy?

YOU’RE WELCOME TO INCLUDE THIS ARTICLE IN YOUR EZINE OR WEBSITE AS LONG AS YOU INCLUDE THIS COMPLETE BLURB WITH IT:

Trudy Scott (CN), Certified Nutritionist is the founder of www.everywomanover29.com, a thriving nutrition practice with a focus on food, mood and women’s health. Trudy educates women about the amazing healing powers of food and nutrients and helps them find natural solutions for anxiety and other mood problems. Trudy’s goal for all her clients (and all women): “You can be your healthiest, look your best and feel on-top-of-the-world emotionally!”

 

MTHFR and Methylation practitioner training by Coleen Walsh

February 23, 2015

mthfr

Confused about Methylation and MTHFR?

MTHFR is one hot topic and many clients are getting their MTHFR results, but do not know what to do.

Methylation cycle abnormalities can predispose you to disease. The MTHFR SNP (Single Nucleotide Polymorphism) is at a key position in the methylation cycle and if not working properly, can affect the whole pathway, creating symptoms and disease, including mood issues like anxiety and depression. The good news is that nutritional protocols and lifestyle modifications can help tremendously.

Online Practitioner Training

My friend and colleague, Coleen Walsh, dubbed the “methyl queen” is doing an online Practitioner Training (for Nutritionists and Healthcare Practitioners) on MTHFR and Methylation on February 28, 2015 from 10am MST – 3pm MST, so you may get a better understanding of Methylation Pathways and how to better help your clients with these SNPs

This 5-hour presentation breaks down the biochemistry of these pathways, and discusses epigenetics and holistic protocols to give you a solid understanding of the subject. 

Plus, when you purchase the event, you also will receive the recordings and 3 hours of bonus material! If you can’t make it at this day/time, you can still register and will get the materials a few days after the event.

A Bit About Coleen:

Coleen Walsh is a holistic and functional nutritionist that specializes in MTHFR and Methylation education and one on one client consultations.  She is author of the forthcoming book, “Thriving with MTHFR: A guide for the everyday mutant!”, dubbed the “Methyl Queen” by colleagues and winner of the 2014 NANP Impact Award based on her research & education on MTHFR & Methylation.  She trains and consults MDs, NDs, L.ACs, DOs and Nutritionists all over the United States and in Japan on the topic of MTHFR and Methylation and has completed hundreds of hours of additional research and education on these pathways.  Coleen suffered from many degenerative and autoimmune diseases and helped heal herself after finding out about her MTHFR status, her passion is to educate and help support others along their journey towards health.

coleen info

We met at the NANP/National Association of Nutrition Professionals conference last year and hit it off right away. I was so impressed with the work she was doing that I invited her to speak on season 1 of the Anxiety Summit.

methylation pathways

MTHFR interview from the Anxiety Summit – for your listening pleasure

I’d like to share that interview with you here, so you can get a taste of her level of expertise and for what she will be offering in the training. It’s yours to listen to whether or not you can attend the training and whether or not you’re a practitioner. Enjoy!

Are Your Genes Depressing You? MTHFR and Your Mood: Trudy Scott interviews Coleen Walsh on The Anxiety Summit

  • The Methylation Cycle overview, MTHFR and B vitamins as cofactors
  • How MTHFR effects the BH4 cycle and serotonin and dopamine
  • Factors that disturb methylation, how to test and what to do
  • Epigenetics and how SNPs are not our destiny

Listen to the recording here:

 

Learn more and purchase

Here is the link to read more about Coleen’s online MTHFR/methylation practitioner training on February 28th and to make your purchase:

http://www.easywebautomation.com/app/?Clk=5393326

Hope to “see” you there – I plan on attending this new training too!

PS. If you do purchase Coleen’s training do let us know by sending a copy of your receipt to support [at] everywomanover29.com and we’ll send you a copy of the transcript of the above audio interview as a nice little added bonus to help solidify your learning!

PPS. Coleen will also be giving a 3 hour training for the general public on March 7th, starting at noon MST. This event will break down the science even more, so that even an “everyday mutant” can follow the information. Details coming soon!

YOU’RE WELCOME TO INCLUDE THIS ARTICLE IN YOUR EZINE OR WEBSITE AS LONG AS YOU INCLUDE THIS COMPLETE BLURB WITH IT:

Trudy Scott (CN), Certified Nutritionist is the founder of www.everywomanover29.com, a thriving nutrition practice with a focus on food, mood and women’s health. Trudy educates women about the amazing healing powers of food and nutrients and helps them find natural solutions for anxiety and other mood problems. Trudy’s goal for all her clients (and all women): “You can be your healthiest, look your best and feel on-top-of-the-world emotionally!”

 

Cauliflower Garlic Bake

February 20, 2015

Cauliflower-Garlic-Bake-1

1 head of organic cauliflower
1 organic garlic head (yes it’s a lot of garlic but then I’m a bit of a garlic lover!)
3 T dried basil (or a handful of freshly chopped basil could also be used)
3 eggs, organic or pastured/free-range
2 T olive oil
1 T sea salt
1 T ground black pepper
½ cup grated organic mozzarella cheese (optional)

And another ½ to 1 cup grated organic mozzarella cheese for the topping (optional)

Butter to grease the casserole dishes (enough for 3 of them)

Chop the cauliflower finely (or place in a food processor) and steam until well cooked (about 15 minutes – longer than you’d typically steam it, so it’s quite soft). Once it’s soft, you may need to use a potato masher to get it really mushy and soft. Remove the garlic bulbs, peel and chop and add to the cooked cauliflower. Add the rest of the ingredients and mix together: dried or fresh basil, eggs, olive oil, sea salt, ground black pepper and grated mozzarella cheese (if dairy is not an issue).

Grease 3 casserole dishes with butter and pour/spoon the mixture into them so it’s about 1 inch (or 2.5 cm) deep – this will make sure it sets nicely and has plenty of nice and crispy stuff at the bottom and sides. It’s purely optional to add some grated mozzarella cheese on top too.

Here you can see how deep the mixture should be to get the crispy stuff at the bottom and sides.

Here you can see how deep the mixture should be to get the crispy stuff at the bottom and sides.

casserole dish

Here are the 3 casserole dishes I used – so you have an idea of size. The cup is just to give it scale.

Place the 3 casserole dishes into an oven that has been heated to 350°F (175°C) and bake for about 25 to 30 minutes until the mixture sets, the bottom/edges start to brown and the topping turns a nice golden color.

This makes a lot and the left-overs can easily be put in the fridge as is (covered of course) and heated up the next day in the same casserole dish at the same temperature (about 10-15 minutes seemed to work.

I love this recipe because you prepare once and get a super dish for at least 3 meals, plus there’s not a lot of washing of pots and casserole dishes to do.

This is a new recipe I created based on inspiration from another recipe I saw. I often do this – see something fun and yummy and tweak it to suit my needs and likes. Brad says it’s the best cauliflower he’s eaten and I must say that I feel the same way!

I hope you enjoy making it and enjoy eating it as much as we did!

YOU’RE WELCOME TO INCLUDE THIS ARTICLE IN YOUR EZINE OR WEBSITE AS LONG AS YOU INCLUDE THIS COMPLETE BLURB WITH IT:

Trudy Scott (CN), Certified Nutritionist is the founder of www.everywomanover29.com, a thriving nutrition practice with a focus on food, mood and women’s health. Trudy educates women about the amazing healing powers of food and nutrients and helps them find natural solutions for anxiety and other mood problems. Trudy’s goal for all her clients (and all women): “You can be your healthiest, look your best and feel on-top-of-the-world emotionally!”

 

BOUGHT the movie – watch at no charge

February 20, 2015

bought

The movie that Big Pharma, the Vaccine Industry, the Medical Establishment and Big Ag DON’T WANT YOU TO SEE!

Watch it at NO CHARGE between February 20th – March 6th (details are below)

I’m thrilled to be able to share this incredible movie viewing with you. Jeff Hayes, producer of the new film BOUGHT, is a man on a mission, and he is making it available to view at no charge from February 20th-March 6th.

BOUGHT is a groundbreaking documentary that exposes the shocking truth behind drugs, vaccines and GMOs. It’s all about Big Food, Big Ag, and Big Pharma and is all about money and profits.

The movie subtitle is perfect: “Your health – now brought to you by Wall Street.”

Watch this film and hear from acclaimed experts in science, medicine, and the law, plus the activists who are raising awareness to help protect their families and will help you protect your family.

Big Pharma funding medical education

You may recognize Dr. Kelly Brogan MD., integrative psychiatrist. I interviewed her on both season 1 and season 2 of the Anxiety Summit. She talks about how Big Pharma funded her medical education. She shared how she was heavily courted by the drug industry and taken to first class restaurants. Of course, she questioned all of this and now educates her patients about real food, gut health, inflammation, curcumin, low vitamin B12 etc.

Shocking Paxil study 329

One of my favorite integrative doctors, Dr. Tami Meraglia MD., talks about the Paxil study 329. It found that suicide ideation tripled in adolescents who were on this antidepressant. The study authors omitted – yes omitted! – these parts from the study saying the adolescents were non-compliant, instead of reporting this as a side-effect! Had this been reported in the study, Paxil would not have been approved for use in adolescents.

A message of hope and empowerment

I love that it’s a movie with a mission and also with a message of hope and empowerment. It’s bringing these issues to light so we can make sure things get changed!  

Brad and I watched the movie earlier this week and we were riveted to our seats! I highly recommend it! You may not agree with everything and much of this is controversial (especially the vaccine information) but I encourage you to simply be open to listening to both sides.

Watch it at NO CHARGE

Just sign up to get access to the full video viewing – you’ll get an email with a link to watch it at your leisure http://www.boughtmovie.net/free-viewing?AFFID=197982

Save your spot, enjoy the video, and do tell others about it!

Addition 2/25/15: Let’s get this message out in a REALLY big way! 

  • Watch it and make a note of  1-3 things that made you go “Wow! I have to tell my sister/mother/husband/wife/best friend/daughter/son this right now!”  Also make note of the time elapsed (e.g. 13 minute mark)
  • For each of the 1-3 things/facts that made you go wow, come back and comment on the blog with each “wow fact” + the corresponding minute mark for each one. 
  • Here is an example: “Wow! Dr. Tami Meraglia – Paxil study – suicide ideation tripled in children – they omitted these parts from the study… 15 min mark”
  • This will inspire others to go and watch these sections and will give a great synopsis with minute marks each of us can go back to.

Win a copy of The Anxiety Summit

As a thank you, once the free viewing ends on March 6, I’ll do a drawing and 3 lucky winners will each win a copy of either season 1 or season 2 of The Anxiety Summit, 25+ hours of expert interviews on nutritional solutions for anxiety. If you already own a copy you’ll get a season 3 when it airs in May.

The 5 Love Languages for fabulous mental and physical health

February 13, 2015

lovelanguagebook

Without loving relationships, humans fail to flourish, even if all of their other basic needs are met.

Love is deeply biological.

It pervades every aspect of our lives and has inspired countless works of art.

Love also has a profound effect on our mental and physical state

The above are from The biochemistry of love: an oxytocin hypothesis published by The European Molecular Biology Organization.

With Valentine’s day coming up I’d like to share a wonderful resource for you to improve your loving relationships so you can truly flourish and see improvements in your mental and physical states.

It’s a book called The 5 Love Languages: The Secret to Love That Lasts by Gary Chapman, director of Marriage and Family Consultants.

This fabulous book will help you

single out your primary love language, what it means, and how you can use it to connect with your loved one with intimacy and fulfillment

And the great thing is that when you have your partner (and loved ones) do it too it will

benefit your partner [and loved ones] to know your primary love language in order to best express affection for you in ways that you interpret as love.

When I first heard what the 5 love languages were – Physical Touch, Quality Time, Words of Affirmation, Acts of Service and Receiving Gifts – I intuitively knew what my top ones would be. But it was still so helpful to do the 5 love languages online profile and read the book to get a really good understanding of it all! (If you’d prefer not to do the online quiz there is also one in the book itself)

As it says on the site:

The 5 Love Languages profile will give you a thorough analysis of your emotional communication preference.

The payoff of speaking each other’s love language is a greater sense of connection. This translates into better communication, increased understanding, and, ultimately, improved romance.

And, if I may add, fabulous mental and physical health!

In case you’re wondering about me, my top two are Physical Touch and Quality Time with Words of Affirmation a close third. Receiving Gifts was a zero for me!

I have to admit that learning that some people also don’t like Receiving Gifts was quite a relief to me. I’ve never been a gift person and always felt like it was kind of weird. Everyone likes getting gifts! Why don’t I? But now I know! I’ll take (and give) a big hug or spend quality time with Brad or my mom or sister before a gift!

Gary Chapman has written a number of books on the same topic but aimed at different audiences: for children, teens and even a one for the workplace. The book for the workplace is called The 5 Languages of Appreciation in the Workplace. I received a copy of this book at a recent business event and we all did the quiz. I was so impressed that I plan to use the quiz with folks that I work with so I can to show appreciation to my colleagues/team in ways that are meaningful to them.

Do let us know your love languages from highest to lowest ranking. And have your partner and loved ones do it too.

YOU’RE WELCOME TO INCLUDE THIS ARTICLE IN YOUR EZINE OR WEBSITE AS LONG AS YOU INCLUDE THIS COMPLETE BLURB WITH IT:

Trudy Scott (CN), Certified Nutritionist is the founder of www.everywomanover29.com, a thriving nutrition practice with a focus on food, mood and women’s health. Trudy educates women about the amazing healing powers of food and nutrients and helps them find natural solutions for anxiety and other mood problems. Trudy’s goal for all her clients (and all women): “You can be your healthiest, look your best and feel on-top-of-the-world emotionally!”

 

Pyroluria and focal musician’s dystonia or musician’s cramp

February 6, 2015

guitar

In May 2014 a gentleman named Jay asked this question on my Pyroluria Questionnaire blog: “have you come across a connection between pyroluria and focal musician’s dystonia (musician’s cramp)?

I responded saying “I have not and until I looked it up I was not aware of this condition. I’m curious why you’re asking? Do you or someone you know have symptoms of pyroluria and focal musician’s dystonia?”

I’m a very curious person and always turn to the research and like to look for connections. I started to dig and came across the The Dystonia Society, a UK based organization that provides support, advocacy and information for anyone affected by the neurological movement condition known as dystonia. They have this definition on the About Dystonia page:

Dystonia is a neurological movement disorder. Faulty signals from the brain cause muscles to spasm and pull on the body incorrectly. This forces the body into twisting, repetitive movements or abnormal postures.

The various types of dystonia are listed and they discuss managing symptoms and say:

Remission from symptoms does sometimes occur but is rare – occurring in around 5-10% of cases.

I posted some feedback, starting a dialogue (both in the comments and via email) that led to me learning a whole lot more about dystonia and the finding out there does seem to be a connection to pyroluria, a social anxiety condition that is not well-recognized in the medical or mental health community. Symptoms include inner tension and discomfort in big groups. Many introverts relate to the symptoms of pyroluria too.

In the process Jay saw wonderful results, we heard from Dave and his success. And we’re getting to share this information in the hope of helping others like him and Dave.

Much of the information is buried in comments on various blogs so I’ve decided it needs a separate blog post – with the connections and research I discovered and some of the inspiring feedback from Jay and Dave.

This is most of what I originally posted (with a few slight revisions).

I do see some overlaps with dystonia and mood so it’s possible there is a connection between pyroluria and musician’s dystonia:

(1) The Dystonia Society is a wealth of information and has this on their mental health page: “it is now thought that people affected by dystonia are more likely to experience mental health conditions such as depression, anxiety and OCD even before the physical symptoms of dystonia appear. It is not known why this is – but it appears that whatever causes dystonia may also affect mood and behaviour in some way.”  Now I wonder how common social anxiety is for those with dystonia?

(2) “An additional relation between dystonia and mental health conditions is that some drugs used to treat psychoses can cause tardive dystonia / dyskinesia. With the new generation of these drugs (called dopamine receptor blockers) this is much less likely than it used to be – but unfortunately a small risk remains.” (this is also from the above dystonia page)

(3) The drug treatments they recommend are also often used for anxiety and depression. I’d suggest assessing for low GABA, low serotonin and low catecholamines first (using the amino acid questionnaire and determining if targeted individual amino acids may give the same relief. I would avoid benzodiazapines – Dr. Catherine Pittman shared the many side-effects and withdrawal effects during the Anxiety Summit.

(4) If you have pyroluria, you’ll also have low levels of zinc and vitamin B6, key co-factors in making serotonin and GABA and other neurotransmitters which affect anxiety and depression.

(5) Depression, anxiety, pyroluria and dystonia have a possible autoimmune/gluten/diet connection. This paper “Movement disorders in autoimmune diseases” discusses how “Tremors, dystonia, chorea, ballism, myoclonus, parkinsonism, and ataxia may be the initial and even the only presentation of these autoimmune diseases.” And here is a case study where the dystonia resolved on a gluten-free diet: “She had complete resolution of her neurological symptoms with introduction of a gluten-free diet.” We know gluten can damage the gut and lead to low levels of nutrients such as zinc and also cause low serotonin.

(6) Wilson’s disease (a serious condition of high copper/low zinc) can have symptoms of dystonia. This 2012 paper states: “The clinical manifestations of neurologic Wilson’s disease include variable combinations of dysarthria, dystonia, tremor, parkinsonism, ataxia, and choreoathetosis.”

I’m so pleased Jay asked this question. I learned a lot by looking in to this initially and since then have learned a great deal more.

And take a look at the fabulous results Jay and Dave saw when they implemented only the pyroluria protocol (the starting dose I use with clients is 100mg vitamin B6 and 30mg zinc and 1300mg Evening Primrose Oil):

From Jay in June 2014

I started taking B6 (Pyridoxine Hydrochloride) 120mg and Zinc USP 60mg 2 weeks ago and do find some relief already. As you may have guessed, I have had dystonia for a long time and had to put a professional musician’s career on hold, and when I read your site, I found that I have a large number of symptoms from your list – I am hopeful.

From Jay in September 2014

I think it is, at this point, safe to say that the pyroluria treatment is, at least in my case, the cure for pyroluria and dystonia. 90%+ of my symptoms have disappeared, I am working extensively on repertoire and I am thinking about getting back into performing.

Dave in September 2014

just writing here to say that i too have battled focal dystonia over the past 8+ years.  actually started as writer’s cramp and then worked it’s way into my guitar playing.  about  3 years ago i noticed symptoms lessened based on different things i ate and shortly after came across pyroluria.  in all questionairs i answer yes to most if not all questions.  

anyway,  for the past 2 years i’ve been on zinc and b6 and have had vast improvements.  for me, the muscle disorders don’t go away without retraining, but the b6 and especially zinc make retraining much more successful.   however, sometimes i do hit the jackpot and my hands work almost normal without the efforts of retraining.  my dose fluctuates between 25-60 mg zinc and 50-100 mg b6 which i seem to have more trouble taking.  i also experimented with methyl b12 but that led to a very painful rash.

the funny thing about all of this is that i feel nowadays that focal dystonia was only the canary in the coal mine for other symptoms that paid little or no attention to because i was only focused on being a musician.  as a result of taking supplements most of those other symptoms are much better and i’m soooooo close now to having proper movement in my fingers.

it’s really great to see what you and jay have posted here because it really validates what i’ve been doing.  i too believe there are many that can be helped by this.

Jay in October 2014

I am so happy to read this dystonia related success story! After my own experience, I still say an experience akin to rebirth as a musician and also as a person, this was the reason for me to post on this blog – to help get this out to musicians who are victims of dystonia and inadequate medical treatment.

We’re hoping we can generate some interest from various dystonia organizations/groups/forums and help more musicians find symptom resolution – certainly more than the 5-10% the Dystonia Society reports. The more people reporting success, the more likely approaches like this will be studied, accepted by the mainstream medical community and included on sites like the Dystonia Society.

If you relate to any of this please do comment and let us know what your results have been.

If you know someone with musician’s dystonia (or another form of dystonia) and pyroluria/social anxiety please do share this with them. 

 

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Trudy Scott (CN), Certified Nutritionist is the founder of www.everywomanover29.com, a thriving nutrition practice with a focus on food, mood and women’s health. Trudy educates women about the amazing healing powers of food and nutrients and helps them find natural solutions for anxiety and other mood problems. Trudy’s goal for all her clients (and all women): “You can be your healthiest, look your best and feel on-top-of-the-world emotionally!”